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Coco Fusco: My relationship with the Cuban art community in Havana began in the And when looking at performance in Cuba, what criteria did you apply? I did also consult some scholars who work on contemporary Cuban culture. . This reminded me so much of Sondos Shabayek's recent essay for Ibraaz on the .

Pediatr Neurol. Shinnar S , Pellock JM. Update on the epidemiology and prognosis of pediatric epilepsy. J Child Neurol. Long-term mortality in childhood-onset epilepsy. N Engl J Med. Epilepsy: new advances. Effects of an educational program on self-management in patients with epilepsy. Ferro MA. Risk factors for health-related quality of life in children with epilepsy: a meta-analysis.

Admi H , Shaham B. Living with epilepsy: ordinary people coping with extraordinary situations. Qual Health Res.

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Anand D , Anand R. J Psychosom Res. Stigma on Nigerian children living with epilepsy.


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J Pediatr Neurol. Multiple impacts of epilepsy and contributing factors: findings from an ethnographic study in Vietnam. Epilepsy Behav. Perceived impact of epilepsy in teenagers and young adults: an international survey. Lived experience of epilepsy from the perspective of children in Taiwan. J Clin Nurs. Eklund PG , Sivberg B. J Neurosci Nurs. I just want to be normal: a qualitative study exploring how children and adolescents view the impact of intractable epilepsy on their quality of life. A qualitative descriptive study of the lived experiences of school-aged children with epilepsy.

J Pediatr Health Care. Emotional complications of adolescent grand mal epilepsy. J Pediatr. The information needs and understanding of 5—year old children with epilepsy, asthma or diabetes. Self-perceptions of social function 2 years after pediatric epilepsy surgery. The experience of discontinuing antiepileptic drug treatment: an exploratory investigation. Main concerns of Iranians with epilepsy. Mulligan J. Epilepsy Curr. Nurs Health Sci.

Lewis A , Parsons S.

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Understanding of epilepsy by children and young people with epilepsy. Eur J Spec Needs Educ. OpenUrl CrossRef. Lewis SA , Noyes J. BMC Pediatr. Concerns and needs of children with epilepsy and their parents. Clin Nurse Spec. Psychological outcome profiles in childhood-onset temporal lobe epilepsy. Social-cultural aspects of epilepsy in Kilimanjaro Region, Tanzania: knowledge and experience among patients and carers.

How can a nurse intervention help people with newly diagnosed epilepsy? Explanations given by people with epilepsy for using emergency medical services: a qualitative study.

Chronic Illn. Experiences of persons with epilepsy and their families as they look for medical and community care: a focus group study from South Carolina. Self-esteem, social support perception and seizure controllability perception in adolescents with epilepsy. Arq Neuropsiquiatr. Patient attitudes about treatments for intractable epilepsy. The importance of the experiences of initial diagnosis and treatment failure when switching antiepileptic drugs.

The health care journeys experienced by people with epilepsy in Ireland: what are the implications for future service reform and development?

Original Research ARTICLE

Epilepsy in adolescence: implications for the development of personality. Wilde M , Haslam C.


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Living with epilepsy: a qualitative study investigating the experiences of young people attending outpatient clinics in Leicester. Mbugua RN. Epilepsy disease, disabilities in poor resource countries: stigma and dilemmas. Abstract P The experiences of the people with epilepsy as they journey through the pathways of epilepsy care in Ireland: a qualitative phenomenological study.

Abstract 2. MacLeod JS.

The Epilepsies and Seizures: Hope Through Research

Risk factors for poor health-related quality of life in adolescents with epilepsy. Health-related quality of life in adults with epilepsy: the effect of age, age at onset and duration of epilepsy in a multicentre Italian study.


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BMC Neurol. Consolidated criteria for reporting qualitative research COREQ : a item checklist for interviews and focus groups. Int J Qual Health Care. Thomas J , Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. Barnett-Page E , Thomas J. Methods for the synthesis of qualitative research: a critical review. A guide to synthesizing qualitative research for researchers undertaking health technology assessments and systematic reviews.

An interdependent dance in transition to adulthood: perspectives of youth, parents, and healthcare providers. Gateshead, UK.

Patient education: perspective of adolescents with a chronic disease.